What is VHL and the VHL Alliance?
VHL or von Hippel-Lindau disease is a genetic form of cancer. VHL patients battle a series of tumors throughout their lives. The VHL gene controls the major feeding pipeline of every tumor. Curing VHL is one step closer to curing many other forms of cancer.
The VHL Alliance is a 501c3 non-profit organization founded in 1993 by three families with VHL to share experiences, learn from one another, support one another, and help the doctors understand and treat VHL. Today, the VHL Alliance is the preeminent resource and clearinghouse of patients, caregivers, researchers, and the medical community.
Help us Cure Cancer through VHL!